I am 55 years old. I was diagnosed with relapsing-remitting multiple sclerosis in 1993 when my children were small. My husband and I decided not to keep my illness from the children but to include them, so they would not be frightened for Mom. We even taught them how to help give me shots in my arms. (I think my son enjoyed that part just a little too much.)
All my life I have required a creative outlet. My earlier life was spent in the theatre as an actress
where I could create roles; then as a set designer interpreting and creating sets. When MS finally crept its way becoming a roadblock to creativity in the theatre, I turned to painting. Eventually, that turned out to be too difficult for my hands.
Finally, I turned to writing as a creative outlet and have found success there. I even managed to find the energy to publish a novel with a character who is diagnosed with MS; after all, we are taught to “write what you know.” If I were asked for advice from an MS newbie, I would offer the quote by the famous German poet Goethe: “If you can dream it, begin it. Boldness has power and magic in it. Begin it now.” Don’t let your disability get in the way of doing what you love. Use your knowledge and turn it into a positive outlet for yourself and your family.
Please consider sharing your story with us at: MSregistry@NARCOMS.org